In late October, Gunhild Stordalen have been discovered the potentially life-threatening disease, writes Dagens Næringsliv.
Systemic scleroderma is a connective tissue disease that can spread to the whole body, and attacks the skin and internal organs.
Stordalen says to DN that she did not know if she is healthy.
– I asked superior Rikshospitalet: “If I die, how come my life to be?” And then he said: “There we are not talking about now,” says Gunhild Stordalen the newspaper .
-Betydelig mortality
The prognosis for patients with systemic scleroderma is severe, depending on the spread and which organs are attacked.
At widespread disease, seen in about 40 percent of cases, the mortality during 5 years significantly, according to Major Medical Encyclopedia. The worst is that if the heart, lungs or kidneys are affected. For half of the patients stabilizes the disease itself and involves limited functionality, writes dermatologist Tor Langeland in Major Medical Encyclopedia.
At Gunhild Stordalen shall disease not yet have spread to internal organs.
Cancelled jobs
Both Gunhild Stordalen and husband Petter Stordalen has since October canceled meetings, lectures and public events.
– We have chosen to talk about this now, despite the fact that no one can know how this ends, said her husband told DN.
Getting experimental treatment
Gunhild Stordalen has been studied both at Rikshospitalet and with specialists in the US. Now she will go through a demanding, experimental treatment in the Netherlands. The next few months she will undergo high-dose chemotherapy and stem cell transplantation.
The news Gunhild Great Valley disease has led to massive endorsements on social media. Saturday morning wrote Petter Stordalen on Twitter:
– I realize that I’m going to be infinitely ill and perhaps shamble down the grave’s edge with both feet until I’m through treatment. But I’ve resigned myself to the risk. The alternative is so much worse. For all I know, is that without stem cell transplant, I’m going to get worse. Much worse, she says in DN report.
Keen food and environment
Gunhild Stordalen is a medical doctor, but has in recent years worked with climate change and environmental protection, both through the foundation Stordalen Foundation , ZERO Conference and GreeNudge. She is also a board member of her husband’s companies Home Invest and Nordic Choice Hotels.
Stordalen managed in our gathering the world’s top scientists, business leaders and politicians to discuss food and environmental issues during the conference EAT Stockholm Food Forum.
Read also:
On the track for greener cities
Clinton comes at Great Valley environment meeting
– Food is the answer to the climate issue
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